Welcome to the North East Lincolnshire Family Information Service Directory

 

Are you looking for childcare? Activities for your children in the school holidays?  

 Use this directory to help you discover services and activities for children and young people aged 0-19 years.  You can check out what is happening in your local Children's Centres plus other private services and activities in and around the area.  

We can also provide support about applying and starting school, free school meals, maternity pay, tax credits, flexible free entitlement for three and four year olds and much more! Just contact us direct on the details below.

Unique - Rare Chromosome Disorder Group

Bulletin Board

Print
Name:
Unique - Rare Chromosome Disorder Group
Address:
Unique the Rare Chromosome Disorder Support Group,,
G1 The Stables,
Station Road West,,
Oxted,,RH8 9EE
Ward:
Not Available
Telephone:
01883 723356
Mobile No.:
Not Available
Email:
help@rarechromo.org
Web Site:
http://www.rarechromo.org
Areas Covered:
  • All Neighbourhood Areas
Registered for 3/4yr Old Funding:
No
Service Description:
Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Established in 1984, Unique is a UK-based charity (1110661) but welcomes members worldwide. Membership of Unique is free but the group receives no government funding and is heavily reliant on donations and fundraising to continue its work.

Unique, offers contact with families with an affected member who has the same rare chromosome disorder or, who has similar symptoms or practical concerns, irrespective of specific chromosome disorder. It produces a comprehensive range of family-friendly, medically-verified information guides on a variety of rare chromosome disorders.

Unique co-ordinates families to assist in research and has password-protected discussion forums for registered members, it also has social networking sites on facebook, twitter, etc. It publishes a magazine three times a year. Unique hosts occasional study and family conference weekends. Unique has over 14,000 affected families and many relevant professionals as members worldwide in over 100 countries. A network of local contacts worldwide promote awareness of chromosome disorders and Unique to the general public and professionals.
Costs:
Not Available
Availability:
Open All Year
Age Groups:
Up to 99 years
Languages Spoken:
Not Available
Referral Procedure:
Not Available
Daily Session Times:
  • Monday: 09:00 - 17:00
  • Tuesday: 09:00 - 17:00
  • Wednesday: 09:00 - 17:00
  • Thursday: 09:00 - 17:00
  • Friday: 09:00 - 17:00
Schools Visited:
Not Available
Facilities:
Not Available
Last Updated:
01/11/2024 00:00:00

If would prefer to contact us, please feel free to give us a call on 01472 326293 and select option 4. Alternatively, you can email us at fis@nelincs.gov.uk. or drop into Riverside Children's Centre, Central Parade, Grimsby, North East Lincolnshire, DN34 4HE.

The information supplied by North East Lincolnshire Family Information Service on these web pages has been obtained from a variety of organisations and agencies. Whilst every effort will be made to provide accurate and up to date information and advice, no guarantee can be given. The information and advice given is not in any way intended to be a recommendation of suitability or quality of provision.