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| Provider Name: | Unique - Rare Chromosome Disorder Group |
| Provider Type: | Bulletin Board |
| Name: | Unique - Rare Chromosome Disorder Group |
| Address: | Unique the Rare Chromosome Disorder Support Group,,
G1 The Stables,
Station Road West,,
Oxted,,RH8 9EE
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| Ward: | Not Available |
| Telephone: | 01883 723356 |
| Mobile No.: | Not Available |
| Email: | help@rarechromo.org |
| Web Site: | http://www.rarechromo.org |
| Areas Covered: | |
| Registered for 3/4yr Old Funding: | No |
| Service Description: | Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Established in 1984, Unique is a UK-based charity (1110661) but welcomes members worldwide. Membership of Unique is free but the group receives no government funding and is heavily reliant on donations and fundraising to continue its work.
Unique, offers contact with families with an affected member who has the same rare chromosome disorder or, who has similar symptoms or practical concerns, irrespective of specific chromosome disorder. It produces a comprehensive range of family-friendly, medically-verified information guides on a variety of rare chromosome disorders.
Unique co-ordinates families to assist in research and has password-protected discussion forums for registered members, it also has social networking sites on facebook, twitter, etc. It publishes a magazine three times a year. Unique hosts occasional study and family conference weekends. Unique has over 14,000 affected families and many relevant professionals as members worldwide in over 100 countries. A network of local contacts worldwide promote awareness of chromosome disorders and Unique to the general public and professionals. |
| Costs: | Not Available |
| Availability: | Open All Year |
| Age Groups: | Up to 99 years |
| Languages Spoken: | Not Available |
| Referral Procedure: | Not Available |
| Daily Session Times: | - Monday: 09:00 - 17:00
- Tuesday: 09:00 - 17:00
- Wednesday: 09:00 - 17:00
- Thursday: 09:00 - 17:00
- Friday: 09:00 - 17:00
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| Schools Visited: | Not Available |
| Facilities: | Not Available |
| Last Updated: | 01/11/2024 00:00:00 |